Ichthyosis Support Group

'people who care about ichthyosis'

Registered Charity Number: 1142457

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Ichthyosis Support Group

People who care about ichthyosis

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Ichthyosis is a rare, painful and visual condition affecting as little as 1:300,000 people across the UK. People affected by this condition often feel alone and isolated, children may be taunted by their peers which leads to low self-esteem. Babies struggle to survive and often fail to thrive which can cause death. Adults face the negative attitudes of a society where appearance matters. All those affected have to deal with the rigid daily routines of looking after their condition to prevent the skin from further deterioration, increasing the risk of infection, which can cause death in severe cases.

The Ichthyosis Support Group (ISG) provides support and advice to all affected by ichthyosis, including the Medical profession. We work to ensure those affected have the opportunity to reach their potential and take an active role in society. The ISG is committed to helping to provide better services for people affected by ichthyosis which includes educating health professionals and providing funding for research into such a rare and disabling condition.

By leaving a legacy to the Ichthyosis Support Group in your Will, you can help ensure that our vital work with these individuals, children and families continues.

Giving in this way is a flexible method of funding the future of the organisation and does not affect your day-to-day income. Ultimately your legacy will help to change people’s lives for the better.

Help us plan a better future for all those affected by ichthyosis.

Visit http://www.ichthyosis.org.uk

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Contact Us

Liz Dale (ISG Administrator)

Ichthyosis Support Group

Make a Pledge

Gifts left in wills are really important to Ichthyosis Support Group. However even if you haven't made a will, making a pledge to do so in the future would really help us to find out about your future intentions.

Pledges are not legally binding so by filling out this form you are not committing yourself! You are simply allowing Ichthyosis Support Group to confidently estimate future support for their cause.

Download Pledge Form

Leave a Legacy

If you have already made a will but you want to leave a legacy to a charity you can make an addition or change it without re-writing your current will. This addition is called a codicil.

To leave a legacy to Ichthyosis Support Group please download the codicil form below and take it along to your solicitor.

Please note however that this form is not legally binding on its own and has to be part of your main will. We advise you to seek the advice of a solicitor.

If you have any questions about leaving a legacy to us, please contact Ichthyosis Support Group directly – they will be happy to discuss this with you.

Download Codicil Form