The Hibbs Lupus Trust

Registered Charity Number: 1147783

52.710229840729, -2.0060854296223

The Hibbs Lupus Trust is a registered charity, founded in 2011 by the Hibbs family. We are a dedicated team whose own lives have been affected by lupus. Raising awareness is a way of life.

What we do

  • We provide support and information to anybody affected by or concerned about lupus.

  • We raise awareness of the symptoms of lupus to encourage early diagnosis and reduce life threatening complications associated with the condition.

  • We raise funds to provide facilities, equipment and services for NHS hospitals and Foundation Trusts for the benefit of lupus patients.

How we do it

Support and information

  • Our patient support group

We set up our first lupus patient support group in Staffordshire. The group meets regularly and provide the opportunity for people living with lupus to meet, share experiences and support each. We aim to establish more support groups to help more people with lupus. Details of the next support meeting will be announced soon.

  • Information advice line

Our information advice line provides support and information for those affected by lupus, their family and friends. Call us on FREEPHONE 0800 633 5118 Monday to Friday from 9am to 5pm. Outside of these hours please email us.

  • Our online community

Through our online community – Twitter and Facebook we provide support and information to lupus patients and put them in touch with others who find themselves in a similar situation.

Information pages on our website

Our website provides information on the symptomsdiagnosis and treatment of lupus.

Raising awareness

We work tirelessly to raise awareness of the symptoms of the lupus through our online communities – Facebook and TwitterWorld Lupus Day, through our wristbands, t-shirts and bags available from our shop, our work with the media, fundraising events and through our army of volunteers.

Providing equipment

The money that we raise through donations, challenge events and fundraising in the community helps to fund equipment that wouldn’t otherwise be provided at NHS hospitals.

Useful Links