Costello Syndrome Support Group

....don't stop asking questions!

Registered Charity Number: 1085605
Manchester, Greater Manchester

53.520022005943, -2.1598485557019

Costello Syndrome, a rare genetic syndrome, is characterized by multiple congenital anomalies including dysmorphic craniofacial features, cardiac defects, ectodermal and musculoskeletal anomalies, failure to thrive, developmental delay and rare cancers. Our children are social, determined and bring great joy to life.

Most importantly, we are a support network through which families can share their experiences and support each other through this journey of raising our children with unique medical challenges.

As we better understand Costello Syndrome and identify the best practices in treatment, our goal is to provide information to each other as parents and to our health providers around the world.

Whatever we learn from each other, “let’s not stop asking questions!” The answers might surprise us all.

Financial Information

August 2019
August 2018
Total Income
Total Expenditure