Costello Syndrome Support Group

....don't stop asking questions!

Registered Charity Number: 1085605
Manchester, Greater Manchester

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Costello Syndrome, a rare genetic syndrome, is characterized by multiple congenital anomalies including dysmorphic craniofacial features, cardiac defects, ectodermal and musculoskeletal anomalies, failure to thrive, developmental delay and rare cancers. Our children are social, determined and bring great joy to life.

Most importantly, we are a support network through which families can share their experiences and support each other through this journey of raising our children with unique medical challenges.

As we better understand Costello Syndrome and identify the best practices in treatment, our goal is to provide information to each other as parents and to our health providers around the world.

Whatever we learn from each other, “let’s not stop asking questions!” The answers might surprise us all.

Contact Us

Costello Syndrome Support Group 90 Parkfield Road North
New Moston

Manchester
Greater Manchester
M40 3RQ

Phone: 0161 682 2479
Email:

http://www.costellokids.com

Costello Syndrome Support Group News

Helaina's Story

Date posted: 08 May 2014

After eight years of trying for a baby, a miracle happened – I was pregnant! It was better than winning the lottery - the best day in both our lives. We found out we were having a little girl and chose the name Helaina. But a scan revealed there were problems – the doctors said she would be born dead and deformed and they advised a termination. Well, after waiting eight long years for our daughter, we didn't even need to think about it – we knew we would cope with whatever was sent to us. We already loved her so much.… Read More»

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Financial Information from CharityFinancials

March 2015 March 2014
Total Income £3,095 £2,896
Total Expenditure £874 £11,118

If you have questions about the financial information listed above please contact Charity Choice at editorial@charitychoice.co.uk