Registered Charity Number: 1153442
Heartline is a national charity which supports children with heart disorders and their families, whatever the condition, wherever it is treated. We provide an online Forum for parents to privately discuss issues between themselves. 'Heart Children' , a comprehensive handbook primarily for parents but widely used by clinicians, is provided free to our families, and sold to other charities and hospitals throughout the UK, and has been in print since 1979. Our award winning dental booklet is provided free to hospitals to give to families, as good dental hygiene can limit the likelihood of the heart disease, endocarditis. To encourage active family lives we provide wetsuits to children so they may take part in swimming - often the only physical activity they can enjoy - caravan holidays for hard- pressed parents and children who might not otherwise be able to take a break, long weekend activity breaks for heart children and separately their siblings to give independence and physical confidence, inter alia. We have a membership of over 2600 Families to whom we provide this support. Hundreds benefit from wetsuits each year, 24 children take part in our carefully supervised activity weekends, potentially sixty families enjoy a holiday on a caravan park, giving rise to heart warming testimonials on the difference it has made to each Family's well being. We offer bereaved families a place to remember their child in the Heart of Stars constellation. Contact with registered families is maintained through social media, newsletters and an annual review. The ability to provide information and support and to reach out to Families is the most important aspect of our work and often overlooked. All this is done by Trustees and Volunteers.
32 Little Heath