We know that having M.E. can be a lonely experience that can make it hard to get your voice heard. M.E. can affect different people in different ways and one person’s experience of the illness can be vastly different from someone else’s.

That’s why we think it’s so important that you have a chance to share your experience of living with M.E.

Action for M.E.’s #ThisisME campaign gives you the chance to show the world what M.E. looks like for you.

Getting involved is easy

* On an A4 piece of paper or card, use a thick black pen to describe – in one sentence – how M.E. affects you. Don’t make it too long or it’ll be hard for people to read.

* Take a selfie, or get someone else to take a photo, of you holding your message.

* Upload your photo to Facebook or Twitter with the hashtag #ThisisME – and don’t forget to tag @actionforme so we can share it.

If you’d rather not share your own picture but still want to support our campaign, you can follow us on Facebook and Twitter and share our posts, pictures and tweets.

Keep up to date with all Action for M.E. news through our website, Facebook and Twitter.