The National Institute for Health and Care Excellence has announced its next steps in updating its guideline on M.E./CFS

After a workshop was held last month so that stakeholders, including Action for M.E. and other patient groups for people with ME/CFS and their carers, could help NICE identify at an early stage the issues they consider most important for the development of the new guideline.

NICE has now confirmed that a further workshop will be held with stakeholder organisations on 25 May to discuss the scope of the guideline. Stakeholders will then have the opportunity to comment on the draft scope between 21 June and 19 July. This will coincide with recruitment to the independent guideline committee, which will also begin on 21 June with adverts posted on the NICE website.

NICE has stated that the guideline committee will include four people with the condition or their carers rather than the usual two. A lay member will also be included on the recruitment panel for the chair of the guideline committee.

We’ll keep you updated with more developments as they happen. 

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