Action for M.E.

Registered Charity Number: 1036419, SC040452

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Action for M.E. Charity News

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GP system updated to reflect M.E. as neurological

Date posted: 01 Aug 2018

The latest update to the electronic health records system used by GPs in England was launched yesterday, listing M.E. as a neurological disorder. Previously it had sat under the headings Mental Disorder (which was removed in 2015) and Multisystem Disorder (which was retired in January).… Read More»

Action for M.E. responds to NICE consultation

Date posted: 26 Jul 2018

We’ve been gathering your feedback for weeks and now Action for M.E. have responded to the National Institute for Health and Care Excellence’s (NICE) consultation on the draft scope for the guideline on M.E.… Read More»

Notts County FC to help raise awareness of M.E.

Date posted: 24 Jul 2018

Notts County Football Club will be helping raise awareness of M.E. later this year after making Action for M.E. one of the club’s official shirt sponsors for the new season.… Read More»

Action for M.E. launches advocacy service

Date posted: 11 Jul 2018

Action for M.E. is pleased to announce that we are in the early stages of launching a new pilot service that will provide direct advocacy to people affected by M.E. in the Midlands and the South West of England.… Read More»

New study brings M.E. test closer

Date posted: 10 Jul 2018

A test to help recognise M.E./CFS could be closer than ever thanks to a new study led by researchers at the Centre for Infection and Immunity (CII) at Columbia University's Mailman School of Public Health.… Read More»

Support available for students with M.E.

Date posted: 09 Jul 2018

If you’re a student or the parent of a student who has M.E. you might want to check out the DSA Claim It! campaign, which offers advice and information about Disabled Students' Allowances (DSAs) and other university-led adjustments.… Read More»

Raising awareness with Work and Pensions Committee

Date posted: 03 Jul 2018

Action for M.E. has submitted evidence to the Work and Pensions Committee highlighting the reality of living with M.E.… Read More»

First episode of M.E., myself and I out now

Date posted: 02 Jul 2018

M.E, myself and I tells the story of Rachel, a 19 year old girl living with M.E. and how she uses her favourite TV character to get through her daily struggles with the illness.… Read More»

2018 research conference programme announced

Date posted: 27 Jun 2018

The full programme for this year’s UK CFS/M.E. Research Collaborative conference has now been announced.… Read More»

NICE consultation feedback now open to carers

Date posted: 26 Jun 2018

Following feedback from people affected by M.E., we have amended our survey on the NICE consultation so that you are able to indicate that you are responding as a carer.… Read More»

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Goods Wanted

Knitting wanted

A long time Action for M.E. fundraiser is looking for knitted items to sell on her market stall. The fundraiser in question says she has enough hats at the moment but welcomes all other items. Wanted in particular are… More information »

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