ITP in Pregnancy Registry Fund
Your gift can help achieve safer pregnancies for ITP mums and their babies
Please help us fund the new ITP in Pregnancy Registry by making a donation today!
Many women have a lower platelet count in pregnancy, but with Immune Thrombocytopenia (an autoimmune bleeding disorder) the platelet count can be so low that the mother-to-be is sometimes at risk of bleeding during pregnancy and may require treatment. The mother’s antibodies also cross the placenta and may destroy the baby’s platelets. Pregnancy can be a very frightening time for the mother with ITP and an ITP in Pregnancy Registry is desperately needed to:–
- Define the best management of pregnant women who have ITP, or who develop ITP during pregnancy
- Identify which women need treatment and which only require gentle monitoring.
- Understand which babies may experience lower platelet counts from their mother’s antibodies crossing the placenta
- Advance understanding regarding when treatment is required and when treatment is inappropriate
The Pregnancy in ITP Registry will be run by Dr Sue Robinson at Guys Hospital in London. Dr Robinson is a Consultant Haematologist with a special interest in obstetric haematology and is Director of the ITP Clinical Centre at Guys & St Thomas’ Hospital, London.
The ITP Support Association has been asked to fund this much needed registry which will cost £17,000 per year for two years – there is no government funding for ITP research or registries. We already fund the adult and childhood ITP registries which has made a real difference to the management of this difficult disease. We could not have done this without generous donations from people like you. If you opt to pay the Charity Choice admin fee when you donate, 100% of your donation will go to ITP Pregnancy Registry Fund.
25 May 2018