Society for Mucopolysaccharide Diseases

Registered Charity Number: 1143472
Amersham, Buckinghamshire

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The Society for Mucopolysaccharide Diseases (MPS Society) is the only registered UK charity offering professional support to individuals and families afflicted by MPS and related Lysosomal Storage Diseases all over the UK.

Since its formation in 1982, the MPS Society has become the leading provider of information and support for MPS and related diseases. The organisation is working with medical professionals and scientists to support families and carers and to make sure that all individuals with MPS have access to best practice in diagnosis, treatment and care.


The Society also funds and promotes research into the causes, effects and treatments of these severely life-limiting diseases.


The charity works hard to increase public awareness of these rare conditions and campaigns to change the lives of children, adults and their families for the future.

They offer an individual Advocacy Support Service with skilled and experienced staff providing a wide range of support depending on each patient or their family's needs.

Because these conditions are rare, the affected people and their families are often restricted in the access needs-led support and services in their local area. The organisation is here to provide a support network promoting awareness and understanding of the diseases.

The MPS Society's Advocacy Team based at Buckinghamshire supports individuals and families across the UK. They also have an office in Belfast called All Ireland Advocacy Officer.

Contact Us

Society for Mucopolysaccharide Diseases MPS House
Repton Place
White Lion Road


Phone: 08453 899901
Fax: 08453 899902

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Financial Information from CharityFinancials

December 2015 December 2014
Total Income £3,576,018 £3,348,812
Total Expenditure £3,316,097 £3,035,690

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