Ichthyosis Support Group

'people who care about ichthyosis'

Registered Charity Number: 1142457

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The ISG vision

"The ISG is committed to the ongoing provision of an information network and support structure for sufferers and families affected by ichthyosis. Associated with that we need to create a greater awareness and understanding within the medical profession and lobby for greater research into this distressing condition".

Background information about ISG and Ichthyosis

The Ichthyosis Support Group (ISG) is a small user led charity, run almost entirely by volunteers affected by ichthyosis to create a supportive network of sufferers, parents and medical professionals. The ISG is a national charity covering all of the UK and strives to raise awareness of the condition and the ISG amongst medics and the public.

Ichthyosis is a rare genetic condition which predominantly affects the skin.  It can affect as few as 1:300,000 people depending on the type of ichthyosis, of which there are many.  It is a lifelong condition, usually presenting at birth and may be fatal.

For many the daily bathing routine is rigid.  Ichthyosis skin requires rigorous scrubbing to remove excessive growth and prevent infections that can cause death.  Thick greasy creams need to be applied constantly to prevent the skin from drying out and cracking.  If left to dry out it can cause contractures, which can even break bones in tiny fingers and toes and the sufferer endures excruciating pain.

Contact Us

Ichthyosis Support Group PO Box 1404

GU22 2LS

Phone: 0845 602 9202
Fax: 0560 343 8046


Charities We Work With

Ichthyosis Support Group News

YP Face It

Date posted: 12 Nov 2012

YP Face it - aged 13 to 17 years? Worried about ichthyosis and the way you look?… Read More»

ISG Online Shop Now Open!

Date posted: 12 Nov 2012

Why not stock up on Christmas cards now and support the ISG at the same time?… Read More»

Ichthyosis in the Media

Date posted: 12 Nov 2012

Want to help the ISG promote Ichthyosis awareness? Read on to find out how.… Read More»

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Financial Information from CharityFinancials

June 2015 June 2014
Total Income £74,127 £55,100
Total Expenditure £63,612 £49,873

If you have questions about the financial information listed above please contact Charity Choice at editorial@charitychoice.co.uk