Ataxia-Telangiectasia Society

Registered Charity Number: 1105528
Harpenden, Hertfordshire

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The Ataxia-Telangiectasia Society is the only UK charity providing family support, information and funding for medical research towards treatments and a cure for A-T.


Ataxia-Telangiectasia (A-T) is a little-known genetic condition, which causes severe disability in children and significantly shortens lives. There is currently no effective treatment or cure. Additionally, female carriers of the gene face a greatly increased risk of developing breast cancer of up to eight times the risk for most women.


Based in Harpenden, the charity was started in 1989 by a group of families who joined together to support one another after their children were diagnosed with A-T.

Since that time, the A-T Society has implemented national clinics for children and young adults at Nottingham and Papworth respectively to ensure a high standard of clinical care and ensure people with A-T are seen regularly by specialists in the condition.  It has provided information and support not only for families, but for medical professionals, teachers, carers and therapists.  The charity assists with funding for equipment like powered wheelchairs, standing frames and computers not available by any other means. 

The A-T Society is at the hub of medical research into A-T, running the A-T International Clinical Research Network to generate and support medical research towards treatments and a cure.

Contact Us

Ataxia-Telangiectasia Society IACR


Phone: 01582 760733
Fax: 01582 760162

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Financial Information from CharityFinancials

December 2016 December 2015
Total Income £391,793 £291,473
Total Expenditure £351,395 £341,423

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