Action For Pulmonary Fibrosis

Registered Charity Number: 1152399

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Action for Pulmonary Fibrosis is a UK national charity focusing on Pulmonary Fibrosis (PF).  Its three main aims are

  • to support patients to improve their quality of life
  • undertake targeted awareness raising of the disease, amongst the medical profession, authorities and the wider public
  • support research into improved outcomes and greater understanding of the disease.

IPF is a little known rare disease.  In some cases contributory environmental causes can be identifed but in many cases there is no known cause.  This is referred to as Idiopathic Pulmonary Fibrosis or IPF.  

The disease attacks the air sacs in the lungs which affect oxygen transfer thus making breathing increasingly difficult.  With very limited treatments and no cure it condemns patients to a very limited and distressing future.  Until recently most patients, when diagnosed, had never heard of the disease and had little useful information available to them.  

Family members and carers also find their lives significantly affected when a parent or relative is diagnosed and feel helpless and very often isolated.  It is on the increase, generally affects more men than women and is usually diagosed in middle age.  Although progression of the disease varies the median survival rate from diagnosis is 3 to 5 years.

Action for Pulmonary Fibrosis assists the setting up of support groups around the country and provides clear and accurate information for patients and their families as well as working to increase the understanding of the disease amongst the medical profession.  We also aim to raise significant funds to increase the research into more effective treatments and ultimately to find the cause of IPF

Contact Us

Action For Pulmonary Fibrosis Beechcroft
Hill Road
Bury St. Edmunds Suffolk

IP33 3TR

Phone: 07554 803293

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Financial Information from CharityFinancials

June 2017 June 2016
Total Income £360,820 £358,597
Total Expenditure £141,368 £88,681

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